Two Letters

twoletters

After many years of dosing myself with Zinbryta on the 15th of the month, yesterday marked Day One of my negotiating multiple sclerosis without the aid of a monoclonal antibody.

My disease has toned down quite a bit since I started taking the drug. Has my MS been mellowing with age—or with medication? That’s been the seven thousand dollar a month question: What is me—and what is the drug?

In a parallel but hopefully irrelevant experiment, my visits to the breast cancer folks inspired me to ditch my deodorant. It took a day to learn that without deodorant, I stink.

It was easy enough to replace the brand I’ve depended on for decades with an equally effective brand that is untainted by propylene glycol and aluminum, ingredients that are potentially carcinogenic yet remain as blandly ubiquitous as the pink ribbons protesting the persistence of breast cancer.

Will replacing one monoclonal antibody with another be as easy as swapping Secret’s “Protecting Powder” for Desert Essence’s “Tropical Breeze?”

The nurse at my neurologist’s office warned me it might take up to six weeks for my insurance company to approve a new MS medication. I chose to see the potential benefit of the delay—I have been noticing that my wounds tend to heal a lot slower on Zinbryta. Perhaps I’ve been lucky to have a mass removed from my breast just as my immune system is getting weaned off an MS drug.

And yet I could not ignore the risk a six-week interval poses: the stakes are a lot higher going off an MS medication than going off a deodorant. MS is opportunistic, and tends to spring into action whenever the body is vulnerable. Perhaps undergoing surgery was the worst thing to do while getting weaned off an MS drug.

The day after my surgery, I got a call from a nurse from my insurance company. I usually regard such nurses as corporate spies. I have no dearth of interactions with health care professionals, or with human beings in general, so such calls do not fulfill an unmet medical or emotional need. But this time around, I did have a need. I decided to play nice. I discovered this nurse was actually more informed than most of the nurses the insurance companies had sent my way. When I found myself searching for the term, “monoclonal antibody,” she supplied it for me, and tactfully assured me I had nothing to worry about when I complained that my facility with language felt somewhat impaired after the general anesthesia. When I told her about the anticipated delay in getting my new medication approved, she promised she’d see what she could do to expedite things.

She was as good as her word.

Two hours later, I got a call from my neurologist’s office. The new drug, Ocrevus, had been approved.

On March 16, Day One of my life beyond Zinbryta, I received two letters from my insurance company.

The first letter denied coverage for Ocrevus.

It’s funny how seeing a letter on stationary can feel more convincing than on one’s own memory. I was tempted to check my calendar, just to confirm that I did indeed have an upcoming appointment for an Ocrevus infusion. Instead I opened the second letter.

The second letter was dated on March13th, the day of my conversation with the insurance nurse. It was a notification of approval.

Thank you, insurance nurse!

I’m so glad I took her call.

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Relief

 

Happy note in my in-box this morning.

Lisa:
Please disregard that letter. It was denied because the lady I was speaking to marked to wrong answer-
So I spoke with a Dr. And and got it overturned. Your are approved and will be receiving another letter. Please let me know if you have anymore questions.

Thanks

K-

 

I opened this note from my physician’s assistant in the midst of a thirty minute phone ordeal with Humana; I’d tried talking to two operators with Kentucky accents and neither one  could find my account, even when I spelled my name with the military Alpha Bravo Chalie method.

I’d gone into this day prepared to be loving. Literally. I was carrying this quote around from activist Ruby Sales,  who said, “I love everybody in my heart. And you can’t make me hate you.” I was going to remind myself, no matter what happened, that Humana might be an evil corporation, but the people making up Humana are basically good. Oh well. That’s a nice thought.

And what was my take-away after the botched claim processing and  the phone ordeal?  Humana, I no longer think you are evil. You did, after all, approve my claim and I can continue taking Zinbryta. But from now on, I’m skipping talking to your basically good people and going straight to your website.

I am not yet an evolved human being who can withstand uncertainty…or being on hold.

And now, another plot twist

Humana just wrote to deny me benefits for Zinbryta, the medication that has kept my MS at bay for ten years. Am I going to fight this? You bet.

They claim they are denying the drug because I don’t have “pre-existing hepatic disease.”

That’s interesting, since a person is not advised to treat MS with Zinbryta if they do have hepatic disease.

Poor Humana. I will have fun. I will win.

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